24 March 2026

The Day My Leg Stopped Working

Shattered myelin sheath

Two and a half years ago, I woke up and my leg simply didn’t work.

No warning. No dramatic build-up. Just that horrible, surreal moment when you try to move and nothing happens quite the way it should.

Because I’ve had multiple sclerosis for years, I assumed I knew what I was dealing with. I thought: right, this is a relapse. Not good, but familiar. Frightening, but at least explainable.

The obvious answer wasn’t the right one

I ended up in hospital and went through the usual routine, including an MRI with contrast. When the scan came back without evidence of an active relapse, I was told it wasn’t MS flaring. That should have narrowed things down. It should have triggered the next question.

If it isn’t MS, then what is it?

Instead, everything seemed to stop at “not MS relapse.” No diagnosis. No real explanation. No sense of urgency about finding another cause. Just time passing while my body was clearly telling everyone that something was wrong.

The missed beginning of a much bigger story

Looking back now, that moment feels less like the crisis and more like the warning shot. The first major sign that something serious was happening. The kind of sign that only looks obvious in hindsight because nobody acted on it at the time.

This blog starts there because that was the first point where the road should have turned. It didn’t. And the consequences of that missed turn have shaped everything that came after.